It's the holiday season so things are busy. You are living in a condo that your boyfriend's mother owns, but you both spend a lot of time at his parent's house. One night, you are helping his mother get out the Christmas decorations and decorate the tree. The odd leaking is still happening, but not quite as bad, and your body is still achy and weak, but you've learned to deal with it as best you can. Your boyfriend is out with his brother drinking. So, around 2 a.m., the mother comes into your room and says your boyfriend needs a ride home from the bar. So, being the good girlfriend, you go retrieve him from the bar. You are realizing things are not right with your body, but you're scared to tell anyone. You were raised to be strong and just fight things internally. Don't show weakness. Don't let anyone know you might not be the super strong, super fit, super woman they all think you are, but it's getting more and more difficult to keep it to yourself because now you are truly getting frightened.
Sunday, January 31, 2016
Guillain-Barre Syndrome: The Beginning Of The End
It's the holiday season so things are busy. You are living in a condo that your boyfriend's mother owns, but you both spend a lot of time at his parent's house. One night, you are helping his mother get out the Christmas decorations and decorate the tree. The odd leaking is still happening, but not quite as bad, and your body is still achy and weak, but you've learned to deal with it as best you can. Your boyfriend is out with his brother drinking. So, around 2 a.m., the mother comes into your room and says your boyfriend needs a ride home from the bar. So, being the good girlfriend, you go retrieve him from the bar. You are realizing things are not right with your body, but you're scared to tell anyone. You were raised to be strong and just fight things internally. Don't show weakness. Don't let anyone know you might not be the super strong, super fit, super woman they all think you are, but it's getting more and more difficult to keep it to yourself because now you are truly getting frightened.
Thursday, January 28, 2016
Today Is Good
Wednesday, January 27, 2016
What Happens At Grandma's Stays At Grandma's
Just Got The Call
Please, oh please, let them approve me and take me in and figure out what ails me! (praying)
I Miss My Body
I miss the young, healthy, strong body I once had. The one that could do just about anything. I could move an entire home full of furniture by myself. Carry king sized beds, TV's, stereos, etc. I was strong and fit and able.
I miss being tall and statuesque. Towering over just about everyone and the looks I received because of this. My overly strong legs that seemed invincible. I could do anything I wanted. Life was my oyster.
That was stolen from me by this rare, strange, and unexplained illness which continues to rob me of life's small freedoms. Driving, using the bathroom, sleeping, all of it. It has taken my abilities and continues to chip away at whatever I have left. It has yet to break my spirit, but that, too, is being chipped away with every night of missed sleep and every painful transfer to the passenger side of my own car that I haven't driven in months. Just another of one of my favorite freedoms I've lost.
I just want my strong body back. I want to hike and swim in the ocean. Climb stairs, run through puddles, and play in the snow. I want to go sledding and skiing, ride a snow mobile and shovel the sidewalks. I want to do everything that most people are tired of doing. All the things that people take for granted because they've never had the ability to do them ripped away in just a few days.
I want my body back. This one is painful and broken and alien to me.
Now It Is Stealing My Sleep
The one thing I have, or had, throughout all of the struggles was sleep. Now, this new development is robbing me of that, too.
I'm somewhat comfortable in my chair, but when it comes time for bed and I can barely keep my eyes open, I lay down and that's when the real hell begins. It starts with my hips going into very painful spasms and never ends until the pain is so intense I can't bare it anymore and I'm forced to sit up. So tired I'm falling asleep sitting up, I have to sit like this for an hour or so before I try the process all over again. Lay down, get comfortable, start falling asleep, get woken up by excruciating spasms that continually come in waves every few seconds until I'm in so much pain and so frustrated I want to jump off a bridge just to get some relief.
I'm on pain killers and muscle relaxers and none of it is really helping. I mean, without them I would no doubt jump from the nearest and highest bridge, but they only do minimal good. So, on top of all the pain and suffering, I'm also riddled with anxiety that I'm poisoning my body with drugs.
The struggle is most definitely real.
Tuesday, January 26, 2016
Mayo, Here I Come
I am currently waiting for my insurance to approve it, then Mayo has to review my files and approve me, then they will call me with an appointment.
Because of this new update, I have created a Go Fund Me account for anyone who would like to help me out with the expenses of going to Mayo. I live 7 hours away, so I will have to have my daughter drive me, and we will have to stay in a hotel each time we go for an appointment. I can't ride in a car for too long, and my daughter just gave birth to my grandson so we will definitely have to rest a night before turning around and coming home. Expenses for this will really add up between gas, food and rooms, and since I live on only disability and have no income, I am pleading for any little bit of help I can get.
Thank you!
You can visit my Go Fund Me page here: Mayo Expenses Go Fund Me Account