I found a bunch of pictures from the time before my whole life came crashing down and my body attacked itself. I thought it would be fun to share. These are random snapshots and photos of my dancing days. Birthday parties, hanging out, dancing. I am so glad I have these to look back on and appreciate my long, strong legs and my athletic strong body. I wish I could heal so I could get it back. I know it would never be the same as in these photos, but it would be the best version of me now that I could make it. Maybe Mayo Clinic will help me get there. Until then, enjoy --
Showing posts with label autoimmune diseases. Show all posts
Showing posts with label autoimmune diseases. Show all posts
Saturday, February 6, 2016
Unable Once Again
A lot of you may not know this, but when you have a hysterectomy there are a few different versions to choose from. Mine was a total hysterectomy, which means they took my uterus and cervix, but left my ovaries. At only 37 years old when I had it, had they taken my ovaries, that would have plunged me into menopause, which to say the least would have sucked. However, the odd thing that comes with leaving the ovaries is I still experience all of the hormonal changes a woman goes through monthly since the ovaries are, in fact, what produce a woman's hormones.
So, although I am sans a uterus, I still get PMS. I get the cravings, the mood swings, the bloating and the sore breasts, just no period. I'm grateful for the last part, obviously, and also grateful to not have gone through menopause at only 37, but I do get tired of still dealing with all of the annoying side effects of being a woman without the ability to at least have more children if I choose. Not that I would have any at my age and in my current condition, but it's nice to have the option.
I decided to write this today because I am having one of those days. A day in which I feel fat and bloated but all I want to do is eat. Sick of being cooped up inside, but don't want to leave the house. Enjoying the sun shining, but also kind of wishing the inclement weather that is on its way would get here sooner so I can hole up and be a bum all day without feeling guilty. I need to clean my apartment, so much so that it's driving me crazy each time I look at it, but I have no motivation to do so. And, add to all of that, I didn't get any sleep last night as my legs decided they weren't going to let me. The pain, the spasms, the tightness -- it all makes a recipe for zero sleep. Imagine if both of your inner thighs were in a charlie horse spasm, but also were contracting in real, and very painful spasms over and over again every few seconds non stop all night long no matter what you did, unless you sat up. That's what I am dealing with. So exhausted I can't keep my eyes open, but forced to sit up on the side of the bed until they feel a little better for at least thirty minutes or so, and then I can lay down and pray for sleep for about an hour before the entire process starts all over again. The contracting spasms themselves wouldn't be a huge deal. I've been dealing with those for 18 years, and they always came on worse when I laid down to rest. It's the new symptoms I can't handle. The tightness and lack of motion. My legs won't go straight, and also won't really bend, they are just kind of stuck in one position. I'm quite literally crippled up from the waist down with everything just kind of contracting and contorting whichever way it wants to go, none of which is comfortable. The pain is a burning kind of pain like everything is on fire. That's a hard pain to treat with even the strongest of pain killers.
I miss being able to stand and walk short distances. That was what gave me that added freedom I hadn't had for many, many years. Rather than being stuck in the chair - like I am once again - I had the ability to climb a few steps or walk enough to go where the chair couldn't go. That is once again all gone and I miss that little bit of freedom. My daughter and grandson are moving in to a new apartment today, and I can't go see it or be with them because there are concrete steps out front. I would love nothing more than to be there with them, helping her unpack and get organized. I wish I could enjoy her happiness and her new found freedom, too. She has sent me pictures and is telling me all about it via text, but I'd give anything to be there with her watching the joy on her face as she begins this new chapter of her life.
With limited abilities and illness also comes the loss of communication with people in my life. It's unavoidable no matter how good friends are, or how much they may love you. People don't want to be around someone who is in constant pain. They may feel bad for you, and may say they will do anything for you, but in reality (and I know this from lots of experience) most people will fade away during really tough times. I understand the process, but it doesn't make it any less difficult. It's just another thing that gets lost during tough times like these. I don't have the energy or the ability to do much of anything, anyway, so I guess it's for the best.
So, that brings me back to today. During all of this pain and suffering, the one thing I can embrace is my ability to rest and do as I please and everyone just has to understand, including me. I am physically simply unable to do much else, so I might as well embrace it. Lots of people would love to stay in their jammies all day and do nothing but watch mindless TV and take naps, so I will appreciate the ability to do that. With the loss of other abilities comes new ones.
So, although I am sans a uterus, I still get PMS. I get the cravings, the mood swings, the bloating and the sore breasts, just no period. I'm grateful for the last part, obviously, and also grateful to not have gone through menopause at only 37, but I do get tired of still dealing with all of the annoying side effects of being a woman without the ability to at least have more children if I choose. Not that I would have any at my age and in my current condition, but it's nice to have the option.
I decided to write this today because I am having one of those days. A day in which I feel fat and bloated but all I want to do is eat. Sick of being cooped up inside, but don't want to leave the house. Enjoying the sun shining, but also kind of wishing the inclement weather that is on its way would get here sooner so I can hole up and be a bum all day without feeling guilty. I need to clean my apartment, so much so that it's driving me crazy each time I look at it, but I have no motivation to do so. And, add to all of that, I didn't get any sleep last night as my legs decided they weren't going to let me. The pain, the spasms, the tightness -- it all makes a recipe for zero sleep. Imagine if both of your inner thighs were in a charlie horse spasm, but also were contracting in real, and very painful spasms over and over again every few seconds non stop all night long no matter what you did, unless you sat up. That's what I am dealing with. So exhausted I can't keep my eyes open, but forced to sit up on the side of the bed until they feel a little better for at least thirty minutes or so, and then I can lay down and pray for sleep for about an hour before the entire process starts all over again. The contracting spasms themselves wouldn't be a huge deal. I've been dealing with those for 18 years, and they always came on worse when I laid down to rest. It's the new symptoms I can't handle. The tightness and lack of motion. My legs won't go straight, and also won't really bend, they are just kind of stuck in one position. I'm quite literally crippled up from the waist down with everything just kind of contracting and contorting whichever way it wants to go, none of which is comfortable. The pain is a burning kind of pain like everything is on fire. That's a hard pain to treat with even the strongest of pain killers.
I miss being able to stand and walk short distances. That was what gave me that added freedom I hadn't had for many, many years. Rather than being stuck in the chair - like I am once again - I had the ability to climb a few steps or walk enough to go where the chair couldn't go. That is once again all gone and I miss that little bit of freedom. My daughter and grandson are moving in to a new apartment today, and I can't go see it or be with them because there are concrete steps out front. I would love nothing more than to be there with them, helping her unpack and get organized. I wish I could enjoy her happiness and her new found freedom, too. She has sent me pictures and is telling me all about it via text, but I'd give anything to be there with her watching the joy on her face as she begins this new chapter of her life.
With limited abilities and illness also comes the loss of communication with people in my life. It's unavoidable no matter how good friends are, or how much they may love you. People don't want to be around someone who is in constant pain. They may feel bad for you, and may say they will do anything for you, but in reality (and I know this from lots of experience) most people will fade away during really tough times. I understand the process, but it doesn't make it any less difficult. It's just another thing that gets lost during tough times like these. I don't have the energy or the ability to do much of anything, anyway, so I guess it's for the best.
So, that brings me back to today. During all of this pain and suffering, the one thing I can embrace is my ability to rest and do as I please and everyone just has to understand, including me. I am physically simply unable to do much else, so I might as well embrace it. Lots of people would love to stay in their jammies all day and do nothing but watch mindless TV and take naps, so I will appreciate the ability to do that. With the loss of other abilities comes new ones.
Tuesday, August 27, 2013
New And Improved Me: Day 3
I had a little slip today and ate sugar (candy) on the way to my doctor's appointment, but I knew better than to let myself get that hungry. I was in a time crunch, but still, no excuses. I didn't go too crazy, but now I will have to endure those three days of cravings again before that goes away and I could care less about sugar. I always feel so much better when I just avoid sugar all together. Yesterday, I did very well. I ate a lot of bananas because for some reason or another I was craving them, and I had a very healthy salad and some oatmeal with honey, cinnamon and a little almond milk. I've grown to LOVE almond milk, and I actually like the unsweetened version much better than the sweetened, not to mention it's less than half the calories at only 30 calories per serving. Plus, it's low carb and very good for you! Can't go wrong there.
So, I saw the Endocrinologist today and he says my thyroid levels are fine to proceed with surgery. Yay! Now, I will call my other doctor tomorrow morning and find out when we can get me on the table and get this devil baby out of me! I'm guessing it's going to be September 9th, or at least I'm hoping! He only does surgeries on Monday, and this coming Monday is Labor Day. I'm really looking forward to the relief and a new chapter in my life. I will be sans uterus, sans giant tumor, and thyroid on the level. I will feel like a new woman!
I just keep telling myself that everything I put in my body from now on is going to affect my health and recovery. I also keep repeating to myself that I want the body that can wear anything again. I loved that feeling. Most of my life I was skinny and able to wear whatever I wanted and look good in it. I want that again. I'm tired of my "fat" clothes, and I'm tired of not having any sort of fashion in my life because I was too busy hiding behind whatever was big enough to cover me. And, I'm just tired of being tired all the time. Even just this extra 20 pounds I have left is enough to drag me down, especially since my lower half is already limited.
Pinterest keeps me motivated as well. Whenever I get a craving or want to eat the wrong things, I go to the health and fitness category and look at all the beautiful and fit bodies and remind myself that can be me. I have to start with mostly diet right now since my body is limited with tumor, stiffness and pain, but once I'm healed up I'll be back on a fitness regimen in no time!
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Never Give Up
So, I saw the Endocrinologist today and he says my thyroid levels are fine to proceed with surgery. Yay! Now, I will call my other doctor tomorrow morning and find out when we can get me on the table and get this devil baby out of me! I'm guessing it's going to be September 9th, or at least I'm hoping! He only does surgeries on Monday, and this coming Monday is Labor Day. I'm really looking forward to the relief and a new chapter in my life. I will be sans uterus, sans giant tumor, and thyroid on the level. I will feel like a new woman!
I just keep telling myself that everything I put in my body from now on is going to affect my health and recovery. I also keep repeating to myself that I want the body that can wear anything again. I loved that feeling. Most of my life I was skinny and able to wear whatever I wanted and look good in it. I want that again. I'm tired of my "fat" clothes, and I'm tired of not having any sort of fashion in my life because I was too busy hiding behind whatever was big enough to cover me. And, I'm just tired of being tired all the time. Even just this extra 20 pounds I have left is enough to drag me down, especially since my lower half is already limited.
Pinterest keeps me motivated as well. Whenever I get a craving or want to eat the wrong things, I go to the health and fitness category and look at all the beautiful and fit bodies and remind myself that can be me. I have to start with mostly diet right now since my body is limited with tumor, stiffness and pain, but once I'm healed up I'll be back on a fitness regimen in no time!
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Never Give Up
Thursday, August 15, 2013
Happy Birthday, Me!
Yup, the big day is here. I'm 38... woo hoo! Yes, I am excited to be 38. I'm excited to be alive. Excited to not have cancer. No, I'm absolutely ELATED to not have cancer!
Not doing much today, just going to relax and continue to enjoy life. Maybe I'll get really ambitious and do some cleaning. Woo hoo, big crazy plans. :)
Thanks once again to all that have emailed to wish me well. Each and every email I get brings me such joy and comfort... so, thank you!
Never Give Up
Not doing much today, just going to relax and continue to enjoy life. Maybe I'll get really ambitious and do some cleaning. Woo hoo, big crazy plans. :)
Thanks once again to all that have emailed to wish me well. Each and every email I get brings me such joy and comfort... so, thank you!
Never Give Up
Wednesday, August 14, 2013
Health Update August 14
Hello all,
Here is the latest update on the giant tumor in my belly:
I have had a battery of tests, including a biopsy of my uterus, all of which have come back normal! Thank God, <taking a moment to actually thank Him>. It is not cancer, and that makes me grateful beyond grateful. I can handle anything with a smile on my face knowing I'm not battling the dreaded 'C' word.
Surgery to have a full hysterectomy and remove the tumor/tumors and my uterus was scheduled for this coming Monday, August 19th, but upon further testing, that has been postponed because my thyroid levels are dangerously low, and with good reason, my doctor will not perform the surgery until that is under control. So, a tiny little pill every day to sort that out is all I have to do, and once I'm back to "normal" we will reschedule the surgery.
I am very excited to have this surgery. I have wanted my uterus gone for many years. These fibroid tumors run in my family, and I have known I have at least two for some time now, so I figured one day it would be a good idea to just have it taken out. That day has come.
It's nice to fully understand why I've been feeling so awful these past couple of years. The weakness is explained by the tumor and my severe hypothyroidism. Actually, all of my recent symptoms are explained away by both of these issues, and it's really great knowing that will be fixed. My doctor is also referring me to a neurologist after my surgery to take a look at my condition and see if there is any way we can fix that too :)))
All in all, this is a good development in my life. I have a lot to do, and will have some recovery time after the surgery, but that's a walk in the park compared to what it could have been. I wake every morning with a smile on my face and thank God for sparing me. I'm not done being a mommy to my beautiful daughter yet, and I want to see my grand babies and do a lot more in this life -- whether I can walk normal or not.
Thank you to all of you who have already sent me well wishes! I appreciate it so much, and it's so nice to know there are so many wonderfully caring people in this world!
Never Give Up
Here is the latest update on the giant tumor in my belly:
I have had a battery of tests, including a biopsy of my uterus, all of which have come back normal! Thank God, <taking a moment to actually thank Him>. It is not cancer, and that makes me grateful beyond grateful. I can handle anything with a smile on my face knowing I'm not battling the dreaded 'C' word.
Surgery to have a full hysterectomy and remove the tumor/tumors and my uterus was scheduled for this coming Monday, August 19th, but upon further testing, that has been postponed because my thyroid levels are dangerously low, and with good reason, my doctor will not perform the surgery until that is under control. So, a tiny little pill every day to sort that out is all I have to do, and once I'm back to "normal" we will reschedule the surgery.
I am very excited to have this surgery. I have wanted my uterus gone for many years. These fibroid tumors run in my family, and I have known I have at least two for some time now, so I figured one day it would be a good idea to just have it taken out. That day has come.
It's nice to fully understand why I've been feeling so awful these past couple of years. The weakness is explained by the tumor and my severe hypothyroidism. Actually, all of my recent symptoms are explained away by both of these issues, and it's really great knowing that will be fixed. My doctor is also referring me to a neurologist after my surgery to take a look at my condition and see if there is any way we can fix that too :)))
All in all, this is a good development in my life. I have a lot to do, and will have some recovery time after the surgery, but that's a walk in the park compared to what it could have been. I wake every morning with a smile on my face and thank God for sparing me. I'm not done being a mommy to my beautiful daughter yet, and I want to see my grand babies and do a lot more in this life -- whether I can walk normal or not.
Thank you to all of you who have already sent me well wishes! I appreciate it so much, and it's so nice to know there are so many wonderfully caring people in this world!
Never Give Up
Monday, July 29, 2013
Long Time Gone
Wow, I realized today that I haven't posted anything worthwhile in a very long time, yet again. I don't know why I keep failing so miserably, but I would like to apologize again. Life just seems to go by so quickly anymore.
I'm not sure how I'm doing, exactly. I feel like I'm at such a stale-mate. I am having a really hard time getting motivated lately, and I don't know if it's because of a little bit of depression, or maybe health issues, or both. Whatever it is, I want it to stop, and I want to feel good and have energy and want to do things again.
I had an idea today for something that might work at getting me moving around more. I've been addicted to Pinterest lately, and I have a board called "Food" that has upwards of 300 recipes on it so far. I was thinking I would start with at least 1 recipe a week; make the dish, take a picture of it, post it here with my awesome wordiness attached, and then move it to a new board called "Finished", or something along those lines. I think it might be a good way to get me out of the house to get the ingredients, then of course moving around the kitchen to create whatever fabulous dish is up for that week, and maybe even some more exercise if I decide to share it and bring it to friends so I don't end up 300 pounds by the end of it all. And if I really got motivated I could do more than 1 a week, maybe even 3! I don't know. It's an idea.
What I do know is something needs to change for me, and I'm the only one who can make the changes. So, I better get my ass in gear and figure out what I'm going to do. I'm starting to get a little moldy like my apartment.
I'm not sure how I'm doing, exactly. I feel like I'm at such a stale-mate. I am having a really hard time getting motivated lately, and I don't know if it's because of a little bit of depression, or maybe health issues, or both. Whatever it is, I want it to stop, and I want to feel good and have energy and want to do things again.
I had an idea today for something that might work at getting me moving around more. I've been addicted to Pinterest lately, and I have a board called "Food" that has upwards of 300 recipes on it so far. I was thinking I would start with at least 1 recipe a week; make the dish, take a picture of it, post it here with my awesome wordiness attached, and then move it to a new board called "Finished", or something along those lines. I think it might be a good way to get me out of the house to get the ingredients, then of course moving around the kitchen to create whatever fabulous dish is up for that week, and maybe even some more exercise if I decide to share it and bring it to friends so I don't end up 300 pounds by the end of it all. And if I really got motivated I could do more than 1 a week, maybe even 3! I don't know. It's an idea.
What I do know is something needs to change for me, and I'm the only one who can make the changes. So, I better get my ass in gear and figure out what I'm going to do. I'm starting to get a little moldy like my apartment.
Saturday, July 24, 2010
Inspiration

Tuesday, June 8, 2010
Day 159
I know, I know, I've been away for a few days. That doesn't mean I didn't walk or keep track, however.
This past weekend I took some more time on my living room painting project. I am still in the prep-work phase, but it's getting there. It's a big living room, and a big project. We're talking full renovation here, not just slapping on a coat of paint. I am removing all the trim, which will be replaced later with real wood instead of the plastic that was up there prior, and the actual painting will consist of two coats of primer (the walls are very dry and very dirty) followed by two to three coats of paint. Plus the ceiling. Phew!
So needless to say I've been a busy girl, and continue to stay busy, which I like. If I have nothing to do I get very bored, very easily, and that's when I become destructive. Idle hands...
So, today I will be getting in some good walking numbers. Today is one of those days that I put on my sneakers and come sit at my desk, and then intermittently get up and go walk for 50-150 steps at a time.
Step count today: 856
Steps I'm behind: 7,329
P.S. All of today's steps were done barefoot. Woo Hoo!
This past weekend I took some more time on my living room painting project. I am still in the prep-work phase, but it's getting there. It's a big living room, and a big project. We're talking full renovation here, not just slapping on a coat of paint. I am removing all the trim, which will be replaced later with real wood instead of the plastic that was up there prior, and the actual painting will consist of two coats of primer (the walls are very dry and very dirty) followed by two to three coats of paint. Plus the ceiling. Phew!
So needless to say I've been a busy girl, and continue to stay busy, which I like. If I have nothing to do I get very bored, very easily, and that's when I become destructive. Idle hands...
So, today I will be getting in some good walking numbers. Today is one of those days that I put on my sneakers and come sit at my desk, and then intermittently get up and go walk for 50-150 steps at a time.
Step count today: 856
Steps I'm behind: 7,329
P.S. All of today's steps were done barefoot. Woo Hoo!
Wednesday, June 2, 2010
Day 153
It was a long holiday weekend, and the down-time, and chance to do what I wanted with my time, was much needed.
Yesterday was a long busy day of catch-up from the weekend. Isn't that always how it goes? We end up needing a vacation from our vacation.
Today it's back to the grindstone. I will be giving her hell on the step count once again! Although the rest felt good, I'm anxious to get back at it. I still got in a few steps here and there, but nothing like I do on a normal walking day.
Step count today: 325
Steps I'm behind: 7,578
Yesterday was a long busy day of catch-up from the weekend. Isn't that always how it goes? We end up needing a vacation from our vacation.
Today it's back to the grindstone. I will be giving her hell on the step count once again! Although the rest felt good, I'm anxious to get back at it. I still got in a few steps here and there, but nothing like I do on a normal walking day.
Step count today: 325
Steps I'm behind: 7,578
Monday, May 10, 2010
Autoimmune Diseases Suck - Day 130
Today is World Lupus Day: http://www.lupus.org/newsite/index.html
I spent some time on the above site reading about Lupus. Lupus is just one of many autoimmune diseases to affect thousands of people every year. The Autoimmune Epidemic
is a frightening thing. What are we doing to ourselves that is causing our bodies to attack? We are obviously a society doing just about everything wrong that we can possibly do wrong. Plastics, harsh chemicals, preservatives, by-products, pollution -- artificial this, artificial that -- the list goes on and on and it's sickening. It's no wonder our bodies cave under the pressure. It's like our immune system throws its hands up and says "that's it, I've had ENOUGH!"
I know that's what mine did, and when it did, I wished I would die so the pain would end. I wouldn't wish what I went through on my worst enemy. At the time, I wasn't considered "unhealthy", I was very fit, ate fairly well (certainly much better than most), didn't do drugs, had recently quit drinking alcohol, and drank water often. Thinking back, I drank water from plastic water bottles. Something was overloading my body, and my immune system didn't like it. Things finally snapped, and I went through the hardest fight of my life, and I'm still fighting.
We can walk outside, and the pollutants in the air attack our body and our immune system. Then we go on to eat and drink things that contain chemicals that further overload our systems, until one day, it's too late. Our immune systems are like someone trapped in a traffic jam that finally snaps and unloads years of pent up frustrations. There are a shocking number of autoimmune cases every year, and an even more shocking number of autoimmune diseases, with more being added yearly.
The best advice I can give is to purify what goes into your body. Eliminate as many toxins from your diet and everyday life as possible. Do not drink out of plastic, do not cook with plastic, and do not store your food in plastic. Use glass or BPA free stainless steel. Eat organic when possible. Don't smoke. Pay attention to what goes into your body, you never know, it might be the one thing that sends your immune system over the edge.
For more helpful information on how to possibly avoid an autoimmune disease, I strongly recommend this book: The Autoimmune Epidemic
by Donna Jackson Nakazawa
I spent some time on the above site reading about Lupus. Lupus is just one of many autoimmune diseases to affect thousands of people every year. The Autoimmune Epidemic
I know that's what mine did, and when it did, I wished I would die so the pain would end. I wouldn't wish what I went through on my worst enemy. At the time, I wasn't considered "unhealthy", I was very fit, ate fairly well (certainly much better than most), didn't do drugs, had recently quit drinking alcohol, and drank water often. Thinking back, I drank water from plastic water bottles. Something was overloading my body, and my immune system didn't like it. Things finally snapped, and I went through the hardest fight of my life, and I'm still fighting.
We can walk outside, and the pollutants in the air attack our body and our immune system. Then we go on to eat and drink things that contain chemicals that further overload our systems, until one day, it's too late. Our immune systems are like someone trapped in a traffic jam that finally snaps and unloads years of pent up frustrations. There are a shocking number of autoimmune cases every year, and an even more shocking number of autoimmune diseases, with more being added yearly.
The best advice I can give is to purify what goes into your body. Eliminate as many toxins from your diet and everyday life as possible. Do not drink out of plastic, do not cook with plastic, and do not store your food in plastic. Use glass or BPA free stainless steel. Eat organic when possible. Don't smoke. Pay attention to what goes into your body, you never know, it might be the one thing that sends your immune system over the edge.
For more helpful information on how to possibly avoid an autoimmune disease, I strongly recommend this book: The Autoimmune Epidemic
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